THE GIRL WITH HALF A HEART

Curious. Why do we say, "I read 3 books." or, "Go get your books." but then we go to the book store. The store sells more than one book. ...

In 2020 I received a new label that I wasn't prepared for; "vulnerable". That label is not necessarily bad, but when put in the context o...

A lot of people do some of their best thinking in the shower. For me, I do my best crying there. Sure I can have some good thoughts, bu...

I didn't really want to share this. I didn't really want to "say" anything. There is so much going in our world right now that my words...

Today was my annual cardiology appointment. The one where I go and have them check to make sure my half a heart is still half and still ...

Our family loves to go on walks. We had a path in the woods behind our house. It was once a railroad but the tracks had long since been...

This is not the blog post had I had planed for March. This isn't what I wanted to share or write about. Spending the beginning of Sprin...

My mom. If you know her, you know she is a strong lady. Confident and wise. Practical and kind. Her greatest treasure is her family, sp...

My dad has been a rock since the very moment our CHD journey bean. I've seen him fight and cry over what CHD has done and where it has b...

Context: I'm the little sister. I was diagnosed with atrial septal defect (ASD) at 7 years old. It's a hole between the left and right at...

I have never wanted people to feel sorry for me. I have never wanted to be pitied. I don't like to be patronized or disregarded. There...

This is the month we've all been waiting for!So get out your red, brush up on your facts because... Here! We! Go!

Here is a list of some of online shops, stores, and boutiques that sell CHD apparel and accessories for the whole family! (Literally!)

It’s a brand new decade. We are a whole week in. Thinking back to 10 years ago makes feel old, very old. But also very nostalgic. I may not

Rain drops on roses and whiskers on kittens. Bright copper kettles and warm woolen mittens. I hope you sing that in your best Julie And...

I found a lump. It was small, life a frozen pea. Early detection saved my life & I believe that now my life’s purpose is to share my story.

One of my favorite; an easy to make; meal. It's delicious and heart healthy...and makes great leftovers! Enjoy!

Did you know that even though I'm the oldest of my siblings, I'm also the shortest? Did you know that all three of us sleep best on our s...

Did you know there's a National Day for just about everything? Chocolate, bunnies, waffles, sending texts to your ex...everything. And ...

This got me. This blurry little e-card or meme or whatever it's called...it got me. It made me stop. It made me hold my breath.  And I cr...